Autism Insights

Showing posts with label Therapy. Show all posts
Showing posts with label Therapy. Show all posts

Friday, October 1, 2010

Autism - Beyond ABA Therapy


As a mother of a child on the autism spectrum and now a professional in the autism field, I am continuously struck by how little the "professionals" and the "decision - makers" really know about autism and its treatment options. Four years ago when my son was diagnosed, I too, as any new parent to autism, was scrambling around to find solutions and the best intervention for my child. I turned quickly to the professionals to seek the answers only to find that there were no definitive ones. How can this be? How can "they" not have all the answers leave me in a state of confusion and despair? I decided then and there that I was going to have to become the expert- and so I did. This is what I have learned.

The first thing that I always tell people whether they are a parent of a newly diagnosed child or a professional is that there is the good news and the bad news. The good news is that we know so much more about autism than we did even ten years ago. The bad news, however, is that there is still so much more to know and that we don't have all the answers.

I've learned that they call it "The Autism Spectrum" for a reason. It is indeed a spectrum. True as it is for typically developing kids, no two kids on the autism spectrum are the same. They can range from a child who is seemingly so unconnected to the social world that it is excruciating for a parent to witness, to a child who, without a background in autism, no one would think he or she was affected.

I ask you then, why would we want to use the same type of intervention for these two children? Yet this is what I see being done all the time. Applied Behavior Analysis (ABA) is the most traditional treatment option. It is the most widely used and continues to be a household word for professionals in the field. "Oh," says the doctor or autism specialist, "Your child has autism, you need to be doing ABA."

What they fail to tell you however is that ABA autism therapy is is not for everyone. It would not have been a good choice for my own son. Just as there aren't two children on the spectrum who are the same, there is no "one size fits all" type of approach to autism. As an autism professional I am tired of hearing and reading only about ABA. Don't get me wrong, I am not against ABA. In fact, it has proven to be a good choice for many Autism Spectrum Disorder (ASD) individuals. I am simply saying that it is high time that we as professionals in the autism field step out of our comfort zone and really educate ourselves what other intervention models are out there so we can begin to do justice to the families that seek our help and expertise.








Stacy Goresko, Ph.D. is a Relationship Development Intervention (RDI® program consultant) in private practice in Boulder Colorado. She is a respected lecturer in her field and has recently been hired to be a national speaker on autism. She has spent the last several years providing support to academic and home programs for pre - school aged through adulthood.

Autism Colorado, Denver, Boulder [http://www.treat-autism.com]

Autism Treatment


Saturday, September 25, 2010

Theatre As Therapy For Children With Autism Spectrum Disorders


I have had the most amazing opportunity. For the last few weeks I have spent each Tuesday and Thursday volunteering at a social skills camp for autistic kids. The camp was held at the school where I will be teaching Drama at in the fall. This is a school for kids with learning differences and there are definitely kids on the autism spectrum enrolled at the school. However, many of the children I worked with at the summer camp are much more challenged than the students who attend the school during the year.

When I arrived the first day I was asked to be the leader for the high school group as their teacher was on vacation. I was happy to have this assignment as I adore teenagers and wanted to jump right in with the group. I didn't have a clue what to expect, but the camp director told me that the kids were sweet and pretty much took care of themselves. She gave me the camp schedule for the day and asked me to talk, talk, talk, to them, reminding me that the goal was to get them interacting as much as possible.

When I entered the classroom there were 6 or 7 young teenagers sitting at desks, looking worried. I introduced myself and told them that their teacher was on vacation and asked them each their names. They responded to me in voices that ranged from very loud - a young man with two hearing aids, to cartoonish, some speaking in high squeaky voices. There was also a boy whose language skills were very limited and who said almost nothing except to repeat back to me what I had asked him. Most of the kids were able to hold casual conversations and responded fairly normally, but there were a couple of kids who gave one word answers or appeared not to understand the questions I'd asked.

The kid's range of levels of functioning was very interesting to me. I wondered as I held a relaxed conversation with one of the kids who actually appeared "normal" in every way, what he must be thinking to be in a situation with other kids who were so much more debilitated. Was this an obstacle for these children emotionally? Or did they understand that while they were perhaps not as stranded socially as some of their fellow campers, they needed the skills practice offered by the camp?

Later I had the chance to listen to the conversation of a couple of the girls at the camp. They were discussing other school programs and talking about the meds they were on, the therapists they went to, the programs they attended, and the kinds of issues the other participants at the programs were dealing with. They seemed to take in stride the idea that they were diagnosed with a debilitating condition and were very openly discussing the issues that arose when living with autism. Again I wondered; what is it like for a child to be this kind of "different?" How much courage it must take them everyday to move through their lives, to try and plot a course through the social world we all struggle in at times. Where we "normal" people struggle, without the added burden of living with a disorder that makes everything we experience more confusing and harder to navigate.

The kids who appeared to be completely unmindful of what was going on I soon discovered, were anything but oblivious. The almost completely silent teenagers soon proved to me that they were not only aware, but that they were all the time processing what was happening around them. I found that with enough support, they could participate and communicate appropriately.

One such instance of communication took place at the gymnastics facility where we had brought the campers. There was one boy who had been at the camp for two weeks before he had even said one word to anyone. Only just recently, he had begun to talk at all, but he seemed to have a transformation at the gym. The first time I noticed a change in him was when I was supervising the kids at the bouncing castle at one corner of the big room. There were 4 or 5 teens bouncing away to their hearts content and I was so surprised to see this mostly silent, normally worried looking guy, boinging around with the others. He had a huge grin on his face! Somehow the physical activity and the whimsical nature of the place we were visiting seemed to have broken through the barrier inside of him. He responded with a huge smile to my requests that he bounce higher and higher, and that he try to touch the ceiling with his head. And then, when a fellow camper fell over and was struggling to get up, this boy, who had not seemed the least bit aware in the classroom of the needs of anybody at all, reached his hand down unbidden and helped his friend up.

The sight of this teenager emerging from of his shell, responding socially to this new and different environment when he was all but unreachable in the classroom, made me wonder. Perhaps there was a key to unlocking the barriers to interaction inside of the other kids. I wondered if perhaps there was a solution to the mystery that kept their social abilities sequestered inside of these young people. Perhaps theatre activities might be the answer for many kids with autism.

In the same way that physical activity brought out the smile and the warmth in my happily bouncing young friend, maybe working and playing with other kids in a drama class or on a show would do the same. It might just be the way to release their ability to interact more socially. The very nature of theatrical activities requires interaction. Kids with autism spectrum disorders have extreme difficulty interacting socially. But in theatre, the interaction is guided by the director and the need for independent resolutions to human social situations is taught to the actors as part of the activities. Theatre arts activities put very little pressure on the participants to independently come up with solutions. But the practice of interaction still takes place, in rehearsal and guided improvisation. Through the organization of these activities in theatre, it seems that the benefits to the child or teen with social skills issues would be a positive one.








Susan Scaccia graduated Magna Cum Laude with a Bachelor of Arts degree in Theatre arts with a concentration in Acting and Directing from Castleton State College in Vermont, where she won the President's Scholarship. She studied classical voice training for 10 years, and has now completed 28 graduate credits toward her Master's Degree in Special Education. Before relocating to Columbia this past October to be near her favorite local resident, her mom, she co-founded and for seven years directed the Rutland Youth Theatre, a program for young performers ages 4 - 18, in conjunction with the Rutland, Vermont Parks and Recreation Department. While with the Rutland Youth Theatre, Susan discovered that attention to the learning style and strengths of each individual child in combination with providing training as pre-professionals in the theatre served her students well towards not only their collaborative goal of creating four lively, energetic full length productions each year, but also as tools they could carry with them in their everyday life as well-rounded, imaginative, self-confident individuals. Susan currently manages the production company Center Stage Youth Theatre and her blog is here, Childrens Theatre